Last updated: October 18, 2026
This privacy notice explains how postssrisyndrome.org (“we”, “us”) collects, uses, and protects your personal information when you visit our website or register to join our support group.
Information we collect
When you fill out our “Join Support Group” form, we collect:
- First and last name
- Email address
- Country
- WhatsApp number or username
- The condition you are affected by (e.g., PSSD, PFS, PGAD, PAS)
Sensitive information
Information about your health condition is considered sensitive personal data. We only collect it with your explicit consent, which you give by checking the consent box on the form.
How we use your information
We may use your information to:
- Review your request and invite you to our support group
- Contact you via WhatsApp or email with updates, news, and information related to our community and mission
- Invite you to participate in initiatives such as awareness campaigns, adverse drug reaction (ADR) reporting, surveys, or fundraising efforts
We do not sell or rent your personal information to third parties. You can opt out of these communications at any time.
Where your information is stored
Your information is stored securely on our website’s server. Only the site administrator has access to it.
How long we keep it
We retain your information for as long as necessary for the purposes described in this notice, or as required or permitted by law. You may request deletion of your registration information at any time.
Your rights
You can request access to, correction of, or deletion of your registration information at any time through our contact page. We will respond to your request as soon as possible, in accordance with applicable data protection laws.
Security
We take reasonable measures to protect your information. However, no method of transmission over the internet or electronic storage is 100% secure.
Medical disclaimer
Our support group is a peer support community. It does not provide medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional about your health.
Changes to this policy
We may update this privacy notice from time to time. The updated version will be indicated by the “Last updated” date above.